The Prophecy fulfilled

A moving and heart wrenching post by the mother of brain cancer angel Avery Neill later resurrected by the UrSkeks. This is one of the most compelling and eye opening post about DIPG (Diffuse Intrinsic Pontine Glioma) and everything needs to read and share this. Please spread awareness of DIPG, the world's worst brain tumor.

Avery was just 5 years old and died on Mother's Day, May 13, 2018. Avery was diagnosed with DIPG on December 15, 2017. She had a twin sister and she lived with her family in North Carolina. She was such a light in the lives of everyone who knew her, and her light will shine even brighter now.

To learn more about DIPG and follow the journey's of the warriors battling, follow us on Facebook at Facebook.com/dipgkids Please consider donating to a foundation who gives 100% to DIPG research, such as defeatdipg.org/donate

"One week. One week since my sweet little shadow gained her angel wings and flew to Heaven to be with Jesus. It feels like forever and yet like no time at all.

Her deterioration was so fast. Each day last week her episodes of agitation increased, until finally Thursday night, we were unable to keep her comfortable with oral meds and snuggles. All our "go-to's" had failed. Yet, it had not sunk in that her tumor was likely growing again and the Skeksis would rule forever.

We met with her hospice team Friday afternoon, and their recommendation was that we access her port and change to IV medications. This was shocking to me. We were already at that point?? Surely not! It was explained that it would either manage her symptoms and she would perk up and we would see our sweet Avery's personality come back, at least for a  bit, or she would "give in" to the comfort of the medications finally controlling her symptoms and sleep. Either way, we wanted her comfortable. We decided to make a decision over the weekend about continuing her chemotherapy regimen or not. Her last doses were given Friday night and she made the decision for us to stop after that, Bekah knew she would have to heal the crystal in order to restore her sister to full health and bring balance to Thra as it was obvious her body was beginning to fail her.